Sat.
Sept. 22, 2012
Friday, October 5, 2012
Marriage Retreat
A little get away
Fri.
Sept. 21, 2012
All the side effects of my chemo and radiation are in
full bloom and I had a pretty rough night. The skin on my chest is on fire and
feels like a bad sunburn. My esophagus is extremely inflamed, uncomfortable and
sore. I didn’t go walking today before my radiation appointment. I think the
smoke in the air is adding to the irritation to my esophagus, so I decided to
sleep in a little and take a day off. I spoke with the nurse at the cancer
clinic and she gave me some cortisone cream to put on my chest several times a
day to help with the discomfort. I told her I just need to know what
discomforts we can fix and what things I just need to learn to deal with for
now. A lot of the radiation discomforts I just need to tough through. Okay
Superman shirt, I think I need to wear you again today! Haha
This afternoon Lincoln and I were invited to stay at our
friends’ cabin with 3 other couples for the Stake Marriage Retreat at the Aspen
Lakes Stake Property. We carpooled up together and went out to dinner. It was
so much fun to hang out with other friends and have fun laughing. The fall
colors are in bloom and it was gorgeous!
A Day at Radiation
Thurs.
Sept. 20, 2012
I accomplished a lot this morning. I went walking
/jogging with Tracy. There are some fires in Idaho and the air has been very
smoky this week. I’ve been sneezing a lot and my eyes are watering like crazy.
I think it’s affecting my esophagus as well. It’s pretty tough to swallow saliva,
let alone drinks and food. But, I’m doing my best to try and drink more
liquids. I decided to buy donuts to take in to the Cancer Center to thank the
doctors and nurses for all they do to care for me and make me feel so loved here.
I also took pictures of the great technicians, Katie and Dana, that help me every day with radiation. I love these ladies. I wore my Superman shirt today to let the cancer not to mess with me!
Katie and Dana, my wonderful radiation technicians!
The radiation machine and me!
Feeling Thirsty
Wed.
Sept. 19, 2012
Today I went in to get an extra 2 liters of fluids to
help me fight off any dehydration. It took 2 1/2 hours and I was chilled to the bone!
I had two blankets on me and I was still cold. Half way through the process, I
had to un-connect from the IV tree and go over to get changed into a gown for
my round of radiation. There they had a ‘blanket warmer’ and they put warm
flannel sheets on my legs and arms while I was doing radiation. It felt sooo
good! When I was done they let me take those with me back to the chemo side of
the office. As I finished up the rest of the fluids, all snuggled under my two
fleece blankets and two warm flannel sheets, the doctor walked by said I looked
like I was ready for a winter campout. Haha I just think my internal thermostat
is broken right now! J
This afternoon I felt much more tired than usual. I think
the radiation fatigue is building up. I was able to meet with Lexy and some of
her teachers for Parent Teacher Conferences. That felt good. It was great to
hear all the awesome things that Lexy’s teachers had to say about her. She’s a
terrific girl.
Boost Time
Tues.
Sept. 18, 2012
I met with my radiation oncologist today. He also told me to try my best to maintain weight until I’m through with
treatment. We scheduled a PET Scan for Dec. At that point the inflammation in my body should be healed and we can see how my body has responded to the treatments.
He says I’m doing
great. I’ll begin the ‘boost’ radiation treatments on Friday for the remainder of my radiation treatments. That's where they target just the large tumor area in an attempt to really shrink it and get rid
of it.
My sister-in-law and mother-in-law drove down to visit with me. We had a
great time. Jenny made a wonderful casserole for us for dinner. I'm so grateful for
family and their love and support. I took a very long nap this afternoon. My chest is beginning to feel like it’s on fire. It's like a bad sunburn. I guess it's just the nature of the beast. I hope the tumor is feeling the heat and dying in the process. Two more weeks to go. A neighbor knocked on the door and had made us some
dinner and just wanted to drop it by. I was grateful I could eat
some of it. I feel surrounded by love.
Chemo Round #11
Mon.
Sept, 17, 2012
Chemo #11 and Radiation #20 out of 30. Dr. Breyer told me
to maintain my weight and not lose any more. The office was very busy with a lot of patients. My friend Tracy took me. We had a good time visiting with all the
other patients. There was a funny conversation with three of us chemo patients that have lost our ability to
taste different foods, especially chocolate. Tracy said she felt so sorry for
all of us and shook her head in disbelief wondering what it would be like to not be able to enjoy chocolate!
Sunday Baking
Sun.
Sept. 16, 2012
I woke up to a beautiful, Fall morning. Regional
Conference was fantastic. Linc called someone in the stake so that I could
watch the 'live feed' over the internet and avoid the crowds at church. The
messages were wonderful and I feel a renewed effort to try a little hard to be
a better person. I’m hoping that last week’s daily shots of neuprogin will be
enough to boost my white blood cell.
Lexy was craving an apple crisp and I told her to help
herself. Since I lost my taste buds about 3 or 4 days ago everything I eat
tastes burnt. YUK! My esophagus is fully engulfed from the inflammation of the
radiation treatment so it hurts to swallow. Thus, I have no real desire to eat
very much. My current favorite foods are ice cold, protein shakes, popsicles,
and vanilla ice cream. I also discovered that I can eat sliced cheddar cheese.
This is such a strange journey that I’m
on. Haha
Lexy and her amazing apple crisp! |
Personal Testimony
Sat.
Sept. 15, 2012
I went walking with Tracy this morning and felt an
increased amount of strength and peace. The sunshine and fall colors were
beautiful. Lincoln and Lexy worked around the house on projects that needed to
be done and I worked on polishing my talk. I made a crock pot dinner for all of
us to enjoy after the meeting tonight. Chad was able to come down from Logan to
be there for my talk. I know he sacrificed a lot to be there and it meant the world to me. Tyler and Andrea made it too and I was just missing Ashley.
I was scared, but grateful for the chance to speak
tonight. I’m grateful that I’m still
here upon this earth to fight for my life and to be able to share my testimony
with my family and the other members of the stake. I felt the Lord sustain me as
I gave my talk in Conference. I am so grateful for
the Holy Ghost which accompanied my words and bore witness of the truthfulness
of the gospel. I also am grateful for the love and support of my wonderful family.
Sacred Parking Lot
Fri.
Sept 14, 2012
Today I had to skip walking because I was sent to the
Provo Cancer clinic to receive my shot early this morning and then travel back
to American Fork for my radiation appointment. I dressed in Sunday clothes and
after my appointments I went to the Mt. Timpanogos Temple parking lot. Just
pulling in to the parking space, I felt a special spirit of having made it to
the temple. I said a humble prayer and asked the Lord to direct my thoughts for
my talk. I took out a paper and pen and the thoughts began to flow. I felt a
specific direction on the topics that need to prepare for my talk on Sat.
How
humbly grateful I am that the Lord blesses us in all circumstances. Even the
temple parking lot can be a sacred place when that’s as close as we can get to
the temple and our prayers are heard.
Temple Day
Thurs.
Sept. 13, 2012
I was able to go walking this morning with Tracy. I didn't feel well enough to jog at all, but I’m glad I went and felt the
sunshine on my face.
Today was Stake Temple Day as we get ready for Regional
Conference on Sunday. We were asked by members of our Stake Presidency to spend
as much time in the temple as possible today. My immune system is low and I
knew that I couldn't be in the temple with so many people and risking germs, so I
was hoping to drive out to the temple parking lot and just spend some time
there. I was feeling so sick after my radiation appointment and receiving my neuprogin
shot that I came home and went to sleep. My stomach was upset for most of the
afternoon & evening and I never made it to the temple. I was very
disappointed. I worked on my talk for the Adult Session of Stake Conference for
Sat. night. I’m having difficulty getting my thoughts to come together. I just
want to make sure that I share what the Lord needs me to say.
My friend, Jeannee knew I wasn't feeling well and brought
by some homemade butternut squash soup and some homemade French bread. I am so
appreciative of her kindness and sensitivity to our family’s needs. I was able
to eat little bits of the bread and it felt good to have something in my
stomach. I asked Lincoln for a priesthood blessing to be able to compose my
thoughts for my talk, to be able to share my thoughts with the spirit, and to
be physically well enough to be there for the adult session. I felt a peace
during the blessing and I know the Lord will sustain me in what I've been asked
to do.
Mt. Timanopogs Temple
Chemo Round #10
Mon.
Sept. 10, 2012 Chemo Round #10
This morning, I went in for the 10th round of
chemo and another dose of radiation. My friend Tracy took me and we had a
wonderful time visiting. I was surprised when they evaluated my blood counts to
find that my white blood cell count has dropped dramatically this past week
and my immune system is extremely low. The doctor allowed me to go ahead and get the chemo
treatment today, but explained that I will need to have a daily shot of
‘neuprogen’ for the next 5 days. This shot is supposed to help my body increase
the production of white blood cells so that I am more able to fight off
infections. Next Monday, they will analyze my blood again to make sure that my
WBC count is back up in the ‘normal’ range or I will have to skip that week’s
round of chemo for another week until my body bounces back.
I was worried that I had done something to cause my body
to take this turn, but the doctor explained that the combination of chemo and
radiation is simply taking its toll on my body as it fights the cancer. I was disappointed because that means that I’ll have to make some
adjustments in my schedule of ‘to do’s’ this week and be more cautious about
being out in public and being exposed to germs. I had a few fun things planned with some friends this week and that's not going to happen. I just keep telling myself
that, if all goes well, I will only have 3½ more weeks of these treatments and then
I can start to recover. Wahoo!
Me & by buddy Tracy at Chemo
Game Day!
Sat.
Sept. 8, 2012
I today I went walking and trying to jog a bit with
Tracy. The fatigue is definitely building up from the radiation/ chemo combo.
My legs were heavy legs and breathing was pretty labored, but I did it!
I went to the BYU Football game with Lincoln this
afternoon. It was extremely hot and I was worried about getting sunburned on my
neck from the radiation treatments. I spent a lot of time under the covered
area enjoying a huge shaved ice drink. I made it to the 3rd quarter,
but then realized I was done for the day. BYU won the game and I went to bed
early and had a smile on my face. Go Cougars!
Go Cougars |
Moving forward one step at a time . . .
Wed.
Sept. 5, 2012
This morning I had such a wonderful experience
exercising. I went by myself and was able to feed the horses on my way and I
jogged (very slowly) about ¾ of my 2+ mile loop. I used landmarks to keep me
going from one point to the next. My favorites are the square yellow metal
pieces on the corners of each block. I make myself run to those and do a little
victory dance when I get there. It was AWESOME! On the hills, when I got tired,
each step I would say, “This is a victory over cancer! This is a victory over
chemo! This is a victory over radiation!” Each step was an emotional win over
this challenge in my life right now and I am literally fighting my way back to
health and it feels terrific!
The neighborhood landmarks that keep me moving forward!
Chemo Round #9
Tues. Sept. 4, 2012 - Chemo Round #9
Today was a long day at the cancer center. Jeannee picked me up at 8:30am and we were there until 2pm.
Although it was a long time, it went rather quickly as we had the chance to visit with
each other and with many of the other patients who were there receiving
treatment. I had the pleasure of meeting a neighbor of ours for the first time
as he came in for treatment and sat right next to me. His name is Wayne and
although we’ve never met before, our ward and family have been praying for him
since he was diagnosed with cancer back in June. He lives up the street from us and it was wonderful to finally put a name together with his face.
He’s not a member of the church, but has been learning about it and he shared
his beautiful simple testimony that he feels God’s love and influence in his
life. I’m so glad I met him today.
I'm trying harder to listen to the promptings of the spirit in my life and act on them. Sunday I had the impression of dropping a little gift off
to three individuals in my ward. I can't remember things as well as I'd like so I wrote their names down on my ‘to do’ list.
This evening I wrapped up a few loaves of yummy bread and dropped them off at
each of their homes. It was so good to visit with each of these people and to
express my love and concern for them and lend them support in some of the
challenges that they are going through. After
receiving so much from so many people, it just feels good to give back. I need
to do more of that.
Opportunity
Mon.
Sept. 3, 2012
Quote of the day: "The pessimist sees the difficulty in every
opportunity; the optimist, the opportunity in every difficulty." L.P.
Jacks. Here's to seeing the wonderful opportunities that each new day brings.
Tonight, I was home resting and the phone rang. I
received a call from our Stake Executive Secretary who called on behalf of our
Stake President to ask if I am willing to speak in the adult session of
Stake Conference on Sept. 15th. I am both overwhelmed and humbled to
be asked to fulfill that assignment. I’m supposed to speak about ‘Faith &
Relying on the Lord’ along with my experiences of the past 6 months or so.
Lincoln suggested that we let the kids know and ask them to come be a part of
that evening. I just hope I can put into words the tender mercies, miracles and
many blessings that I and my family have experienced throughout this cancer
journey.
An optimist would say that, even though presenting this talk will be difficult, it is a wonderful opportunity! I move forward in faith.
Inspiring Young Woman
Sun. Sept. 1, 2012
I read this quote from a
young woman named Kristin Sumbot fought through more than 2 years of chemotherapy
and radiation before she was finally pronounced cancer free. She is now a
college student and planning a 20 day trip to climb Mt. Kailash, an 18,000 foot
mountain near Nepal, to shout from the mountain tops that she beat cancer. She
is traveling with other cancer survivors and care givers and taking ‘prayer
flags’ that have the names of people who've been affected by cancer. This is a
profound quote that she made in the article:
"You cannot just put
a cancer journey in a box and feed it to the dust bunnies under your bed,"
she said. "You have to use it as a tool. I now live life like it should
be, not looking out into the rain longing for normality, but feeling each rain
drop … and embracing those kinds of moments because you are alive to do
so.
No one is ever the same
after having been affected by cancer, but we can be a tool for good as we use
these experiences to touch the lives of others with stories of hope, courage,
and determination. I want to use my experience for good."
Kristin Sumbot – BYU
Student – Cancer Survivor
Tuesday, September 11, 2012
BYU Football Season Begins!
Thurs. Aug 30, 2012 – First BYU
Football Game of the Season
This morning
I was able to drag myself out of bed to do my 2+ mile walk. I am feeling more
of the fatigue from the radiation right now. Afterwards, I showered and went to
my radiation appointment. After coming home, I was completely wiped out and had
a really good nap. Later I woke up to eat lunch and do a few things around the
house like laundry and vacuuming out the car. Then the fatigue set in and I
took a 2nd nap! Wow! I’m trying to be patient with my body and allow
it to get the rest it needs, but I have to admit that I feel a bit like a
little old granny sleeping as much as I have today. Haha
This evening
was the first BYU football game of the season and kick off was at 8:15pm. A
dear friend of ours was able to get us a parking pass close to the stadium so
that I wouldn’t have to walk too far to get and from the games. It was
wonderful. As the crowd rose in the stadium for the playing of the national
anthem, a wave of emotion swept over me as I remembered 5 months ago when I was
first diagnosed and we were deciding if we should buy season tickets for the
coming fall. I told Lincoln, “We’re buying those football tickets and I WILL be
going to the games with you!” Well 5 months later, there I stood next to my
sweetheart in our BYU blue and white colors getting ready to make it through
another football season together! I’m so grateful to still be here and for the
gift of enjoying these moments with the people I love. I’m grateful to God for
his tender mercies in my life. I will keep fighting! By the way, although I was
only able to make it half way through the game, BYU did win and I plan on
winning, too!
What a wonderful, wonderful world!
Tues. Aug, 28, 2012
This morning
I went walking again with Tracy. We even jogged almost half of our route. It
felt really good. I love talking with her and laughing. It’s good for my
spirit. Later I went to my radiation appointment and had my weekly visit with
my radiation oncologist, Dr. Clark. He checked to see how I’m doing after the
first 7 radiation treatments and 2 low-dose chemo rounds. I still feel good and
have not seen any redness or irritation on my chest or neck from the radiation
yet. He clarified that when I’m done with the 6 weeks of radiation/chemo that
they will give me 3 months of no treatments for my body to heal from everything
and then another PET Scan. I can’t even imagine what 3 months without any chemo or
radiation will feel like, probably, like HEAVEN! I’m really looking forward to
that.
This
afternoon I took a nap and was surprised when I woke up to find that a dear friend
in the ward had dropped off a dinner for our family. What wonderful friends we
have! I stopped by to see a young man who is leaving on his mission tomorrow
for England and to wish him well. Then I stopped by to see my friend who had
brought us the yummy dinner. It was wonderful to feel her spirit and reconnect
with her. She’s a special lady.
Just as we
were getting ready to go to bed, The door-bell rang and someone left an amazing
Chicken Alfredo casserole on our porch. As we knelt in prayer, we gave thanks
to our Heavenly Father for such a kind ward in which we live and for so many
good people willing to reach out and support us right now. We are truly blessed.
Chemo Round #8 & Radiation Week 2
Mon. Aug. 27, 2012
Today was
the beginning of Week 2 radiation and chemo. My friend, Jeannee, came with me
for the ‘fieldtrip’ to the cancer center. The team of nurses and doctors that
work there are really great people and I appreciate all they are doing to help me
heal and get better, but I don’t necessarily ‘like’ going there. J
Having my
friend with me made the experience so much more enjoyable. We chatted about a
million different things and laughed together. The time really seemed to fly
by. She’s amazing.
At one point, an older man, about 73, came in and sat by us.
He was definitely tired and not feeling well, but he had a smile on his face
and said hello to everyone in the room. As we visited with him, we learned that
he was going through chemo for the 3rd time! I can’t even imagine
what that would be like! My heart went out to him and I admired his desire to
be happy and cheerful, despite his challenge. Happiness really is a choice and
I’m grateful for the examples of goodness, love and courage that I see all
around me. Although the cancer center is not a fun place to go visit, it truly
is a sacred place. There’s a special spirit as some people reach out to help
heal and comfort those who are suffering and others who are fighting for their
lives and trying to understand the purpose in their challenges.
Ashley Off to College
Thurs. Aug 23, 2012
All day long
Ashley packed up her things and squeezed them into her little 1990 Nissan
Sentra to take back up to Utah State for another year of college. I have
appreciated her coming home this summer to help me with the wedding and being
my personal helper with life as a chemo patient. She’s never complained and she’s
made me laugh and smile.
I will miss her this year. She has been overwhelmed
with not having a job when she goes back. Something about conflicts with her
class schedule. Just as we were hugging good-bye, her cell phone rang and it
was a lady at Aggie Ice Cream asking if she was still available for a job with
them. Tears of joy ran down her face and then down mine! So after the call, we
had a ‘thank you’ prayer and hugged as she headed back up to school. I’m so
grateful for tender mercies and for answered payers. I know the Lord is mindful
of each of our situations and that He is with us. Good luck, Ashley!
Happy 25th Anniversary
Wed. Aug 22, 2012 25 years of
marriage
Today is my
25th wedding anniversary! Wow! Lincoln and I had talked about
waiting until I get better to go do something to celebrate, but I decided that
we need to celebrate ‘now’! It couldn’t be anything too big or too far away, so
we decided to just go out to dinner and spend the night away together. Life is
too short and too fragile to just take for granted that there will be ‘another
time.’ I’m grateful for the past 25 years with my best friend at my side. We've had challenges, but so many blessings and joys in our lives. I’m grateful for
the gift of life and for the opportunity to be a wife and mother and for the
wonderful lessons that I’ve learned along the way. Lincoln still tells me that
he loves me and that I’m beautiful. I’m a lucky woman. Here’s to 25 more years!
Lincoln & Lisa - 25 years! |
Phase 2 of Treatments Begins
Mon. Aug. 20, 2012 – Radiation Begins!
This morning
I started with a 2+ mile brisk walk. It felt really good again. Each time I go,
I feel stronger and stronger. I recognize that the radiation therapy will bring
on added fatigue in a few weeks, but right now I feel really good.
After a
shower, Ashley went with me to have my first radiation treatment. It went relatively
smooth and only took about 20 minutes. Then I met with Dr. Breyer to discuss
what chemo she wants me to take on a weekly basis for the next 6 weeks. I’ve
been praying that my doctors will be inspired as to what will best help me beat
this battle against cancer. Today I was told that because I
have responded so well to the Carboplatin and Taxotere chemo drugs, she wants
to keep me on those 2 meds on a much lower dosage. I was quite surprised because
she had mentioned a possible different medication last week when I saw her.
She
said that it’s such a low dose that it’s like a ‘whiff’ of chemo compared to
the heavy doses I was on previously. I also thought my chemo would be a 30
minute session, but after talking with the nurses and getting set up for my
chemo, I learned that it is more like a 3 hour chemo event each week. I have
to admit I was a little bummed about that aspect of the treatment. I’ll still
need to take the anti-nausea drugs for the first 5 days of chemo just to make
sure that I don’t get sick. The bottom line is that I want to get better and if
I want to do that, I’ll need to follow the doctor’s recommendations. This phase
will last for 6 weeks. I have already conquered 4 months of heavy chemo; I know
I can do this.
After my
appointments, Ashley dropped me off at a local bakery to have lunch with two of
my good friends. It felt really good to laugh and to visit with them. They are
amazing ladies and I love them dearly. I have so many blessings in my life. I
have a great deal of positive to focus on and that’s what I choose
to do right now! J
Wonderful Sunday Happenings!
Sun. Aug. 19, 2012
I have to
remind myself from time to time that Sunday is a day of rest. Rest from the world’s
activities, but not from the Lord’s. We had a meeting at 10am with a member of
our Stake Presidency and our high councilman to discuss our calling. It was a
wonderful meeting. We attended Sacrament Meeting with Lexy in our home ward and
then went down to the singles ward. We returned home around 3pm and I emailed
all of the weekly singles ward activities out to the home ward YSA Couples so
they can share it in their home wards. Lincoln made some yummy zucchini bread
for the families that he home teaches. Then I started on dinner. Tyler and
Andrea joined up and we really had a fun time together. Our garden is producing
so much beautiful tasty treats that I’m thrilled. We had fresh tomatoes, onions
and green pepper slices on our grilled hamburgers. It was delightful! I also
made a yummy peach cobbler from the fresh peaches that a neighbor brought to
us. Wow! It turned out pretty terrific. I made copies of the recipe for Ashley
and Andrea to take to school.
After
dinner, I helped Andrea with Thank you cards, Lincoln helped Tyler updating a
computer and Ashley and Lexy hung out with us. After Lincoln’s home teaching
appointments another neighbor brought by some delicious bacon wrapped chicken
skewers and some pistachio encrusted chicken breasts to share with us. We were
all in heaven! Today was a wonderful day of serving and being served and
feeling God’s love in my life.
Kinda feeling like a Super Hero
Sat. Aug. 18, 2012
This morning
I got up early to go walking again. Tracy was busy, so Lincoln and Lexy decided
to go with me. As we got about 3 blocks from our house, I asked Linc & Lexy
if they saw a cape flying off behind me. They looked at my kind of funny. I
told them that I felt so good, I felt like I was a superhero and that I was
flying! J It feels so good to be getting
stronger and to not just be alive but to feel alive!
We had a
great walk together and Lincoln said he was quite surprised at the pace that we
walked. I’m not winning any Olympic medals, but the last time he went on a walk
with me, we only walked about 3 blocks and then turned around and came back
home. This week my route has been 2.33 miles and we walk pretty fast. It felt
good to know that this ‘chemo’ lady is getting some strength back. It’s very
empowering.
Ashley had a
vocal recital this morning. We went to support her and listen to all the other
students sing. It was wonderful. Ashley was the last to perform and it was
fabulous! She has the most amazing voice and she lights up when she performs.
It was a treat to be there. I’m going to miss her when she leaves next week to
go back to Utah State. She’s an amazing young woman.
![]() |
Ashley - An amazing young woman! |
Blessings Through Trials
Fri. August 17, 2012
This evening
we attended a wedding reception for some good friends of ours. Their oldest
daughter got married and it was wonderful to see them on their happy day! At
the reception, I ran into several students from Rocky Mountain Elementary and
they were so happy to see me. I had fun talking to them. One girl told me that
her mom was helping in the kitchen and wanted to see me.
I stopped by to talk
with her for a few minutes and she gave me the biggest hug and congratulated me
on my recent good news of moving from chemo to radiation. She said her family
prays for me every day and I was so touched by her faith. Then she said
something to me that really sank in. She said, “I’m so grateful for your
journey and the opportunity that my children have had to pray for you and fast
for you. Because of you, my children now have a testimony of miracles and the
power of prayer. Thank you for allowing us to be a part of this experience.”
Once again, that thought came to my mind, ‘Remember, Lisa, it’s not about you.’
The Lord’s ways are not our ways and so much good can come out of challenges and
trials. He truly is in charge and we must always remember, remember to trust in
His will and His timing.
Getting Stronger Day by Day
Thurs. Aug. 16, 2012
I went
walking with Tracy again today and it felt great. I can feel myself getting
stronger. My right foot seems to bother me the most, but a few extra strength
Tylenol and 30 minutes to let it kick in and I’m ready to head out the door and
work up a sweat. I love talking with Tracy in the morning because she makes me
laugh and feel good. I’m pretty comfortable waving at people as they drive by,
even though I don’t have my wig on and I just have on my trusty baseball cap.
It feels very liberating.
Getting Tattooed!
Wed. Aug 15, 2012
This morning
I took off early to go to the Utah Valley Regional Medical Center Oncology
Dept. There they ‘simmed’ me or I went through a simulation. It’s a process
where they have me lie on a flat table in a room with a CT machine. The machine
takes pictures to show where the tumor is and then the technician puts marks or
‘tattoos’ on my body so that every single time I get on the machine for my
radiation, I will be laying in the exact same position as they administer the
radiation. I was expecting to have 3
tattoos. Nope. I have 5 tattoos. I asked if I could have a butterfly tattoo
since we were at it and he smiled and said that wasn’t an option. Oh well. You never know unless you ask!
The tattoos look like black freckles they will use to line me up with the laser beams. I
have one on either side of my torso, one at the base of my left rib cage, one
on my sternum area, and on close to my left clavicle. It was a pretty
straightforward procedure. The technician explained that Dr. Clark now has 3
days to look at my Pet Scan and tumor info and will determine where exactly my
body will receive high doses of radiation to shrink the current large tumor and
where to direct the low doses of radiation to ensure that the previous areas of
cancerous activity in my lymph nodes is gone for sure.
I feel very
optimistic about this process and feel at peace about where we are headed.
Looking to the Future with Hope
Tues. Aug 14, 2012
This morning
I walked with Tracy again and it feels so good to be active and in the
beautiful outdoor air. My feet are always sore in the morning, so I take my
Tylenol early enough to let it start working before we get walking and it does
help some. I don’t have to limp quite as much. We were able to walk 2.33 miles
at a quick pace and I was thrilled! I
came home, changed and showered and then was ready for a little down time. Haha
Lincoln came
home early from work and together we went to meet with Dr. Clark, the new
radiology oncologist. I was a little nervous, but said a prayer before leaving
the house to be able to understand what my future treatments will be like
regarding radiation and how that will change my day to day routine at this
point.
Linc & I
met with Dr. Clark today for 2 ½ hours. He’s a radiation oncologist and works
very closely with Dr. Breyer my oncologist. They are in the same office. I had
butterflies in my stomach as we waited to be called back to an exam room. As
soon as he walked in the door he had a big smile on his face and shook our
hands. His nurse Vicky was very warm and reassuring as well. Dr. Clark began by
explaining that he had looked over and compared my PET Scan from March 27th
of this year with the recent one on Aug. 8th. He smiled and said the
difference between the two was “Remarkable!” He said my body is doing exactly
what it’s supposed to be doing in reacting to the chemo. He said there is no more
metabolic activity in the lymph node system throughout my left chest area or
neck except for the largest tumor which is in the upper area of my left lung.
Wahoo! In a nut shell, he explained that I will go through 6 weeks of
radiation, 5 days a week for 6 weeks. In addition, I will also be on a once a
week low dose round of chemo that will help my body accept the radiation more
effectively. Instead of 5 hours of chemo every 3 weeks like I’ve been doing, I’ll
have a 2 ½ to 3 hour chemo session once a week.
After 6
weeks of this type of treatment, they will give my body a 3 month break from
all treatments so that I can heal. They at the end of the year they will do
another PET Scan and re-evaluate how my body has handled the treatments and
then we go from there. He was very clear in that his goal was not to have my
cancer go into remission, but to CURE me of this cancer. Wow! I can hardly
process that thought, but I am so grateful for this miracle that is taking
place in my life. I am so humbled that my prayers are being answered and that I’m
getting better. It’s hard to put into words, but I’m going to live. I’m going
to be here to share this mortal experience with my husband and children and I’m
so, so grateful. I really feel like I need to keep my feet on the ground and
just take this one step at a time, one appointment at a time and one day at a
time, but I’m doing it with a smile on my face and a grateful heart.
Listening to the Spirit
Mon. Aug 13, 2012
Today would
normally be the horrid Day 4 after chemo, but not today! Since I didn’t have
chemo last Friday, I was really wanting to go out and go walking in the
neighborhood for exercise. My feet are still pretty sore from the neuropathy, but I took some
Tylenol and then cleaned the kitchen waiting for the medicine to kick in. I saw
people running outside and walking their pets. I even saw my favorite visiting
teacher run by and I just wished that I had someone to walk with. My daughter
had been up late watching a meteor shower and I didn't have the heart to wake
her early, but I felt sad that I wasn’t out among the movers and shakers this
morning.
And then it
happened, just as I resolved myself to doing laundry, my phone rang. It was my cute visiting teacher who had just gotten home from her fun and felt impressed to give me a
call and see if I wanted to go for a walk. I was stunned! “Yes!” She told me to
get ready and she’d be by in 10 minutes to take me for a walk. We were only
gone about 25 minutes, but it was so wonderful to get out in the fresh air and
move my body! I loved chatting with her and waving to neighbors that drove by.
We stopped to feed the horses on the way back. When I finally got home, I was
thrilled to have broken a sweat and earned a shower! I am so grateful for my
friend listening to the spirit and giving me a call to go on a simple walk. It
meant the world to me. I know Heavenly Father knows who I am and that he is
aware of even my smallest desires. I am so grateful that my friend lives her
life in a way that she can listen to the promptings of the Spirit and acts on
them. In so doing, she blessed my life today for which I am deeply grateful!
Miracle still sinking in!
Sat. Aug. 11, 2012
Today was a
surreal day! I woke up and looked out the window at the beautiful day ahead of
me and thought, “Hearing yesterday’s news that the cancer is out of my lymph
nodes is as surreal to me as the day that I was diagnosed and told that I have
cancer.” I’m still trying to let it all sink in. I am still tremendously
grateful and humbled by this miracle in my life.
A Miracle Happened in My Life Today!
Friday Aug. 10, 2012
I woke up this morning getting
ready for round #7 of chemo today. Lincoln had an early appointment with our family
doctor. His doctor asked about my cancer and my prognosis. The doctor asked if we had
asked our oncologist if my cancer is terminal and if so, how much time do I
have. He said we may want to be aware of the time frame in order to make some
decisions about what we do with our time, if it is limited. I was stunned. How
can I ask if it is terminal, if I feel at peace about what I’m going through.
How can I have faith and hope for a miracle, if I’m asking if I have limited
time? We decided that we will ask my doctor if it gets to that point that it appears that
I have a limited time. Deep breath!
In the car as we drove to the doctor’s office, I told Ashley that we were going to ask
some hard questions about how much time the doctor thinks I have and to be
prepared for anything. Ashley looked at me and said, “Mom, you’re going to be
okay. My patriarchal blessing tells me to counsel with my parents about my
college education and about who I will marry.
I know that you will be around for me to talk to about those things. You’re
not going anywhere.” I needed to hear her faith and conviction. I love that
girl!
A miracle happened
today! My PET Scan shows that all cancerous clusters in my lymph nodes are now
completely gone! The only remaining cancer is the mass in my upper left lung. Now
we move on to radiation. That means I did NOT have chemo today! Wahoo! I will meet
with the new doctor next week to learn more details. A big THANK YOU to everyone who's been praying for me and for being a
part of my miracle!
I was so
grateful for the wonderful news that the oncologist shared with us today. I
asked her if I could give her a hug and I thanked her. She replied, “What are
you thanking me for? You’re the one who’s done all the work!” I thanked her for
going to school and learning about medicine so that she could take such good
care of me.” I also had Lincoln take a picture of us together.
I emailed
and texted family and friends about the update on my condition and posted it on
Facebook. I’ve received so many incredible well-wishes from so many friends
from literally around the world. It has touched my heart and lifted me. What a
wonderful, wonderful day of celebration! I thank my Heavenly Father for his
tender mercies in my life and for listening to all of our prayers!
Busy Day Just Being a Mom
Thurs. Aug. 9, 2012
I started
taking my steroid drugs again as I get ready for my next round of chemo tomorrow.
It was a busy day just doing 'mom things.' I took Lexy to appointment with her school counselor and then Ashley to a dentist appointment.
It was funny because the dentist commented on my new hairdo and how
much he liked it. He said that he almost didn't recognize me. Ashley had a funny look on her face like "What are you going to say?" I simply thanked him. I think Ashley smiled in relief. Sometimes, I just don’t feel like talking about cancer.
I had
a long nap this afternoon. I think my body is trying to catch up on lost sleep
from the reunion! Chad has been home with us working on the rest of his
medical school applications and fixing some things on his car. It’s been so
much fun to have him home and to be around him.
PET Scan
Wed. Aug 8, 2012
This morning
came far too quickly. I left at 7:30 am for my 2 hour Pet Scan. It went just as
I had anticipated. I remember having one of these the day after I had my first
round of chemo. The Pet Scan will detect the areas of uncontrolled cancer
activity in my body and help the doctor to determine what my progress is in
fighting the cancer and where we go from here with my treatments. She will go
over the results with me on Friday at my appointment for round #7 of chemo. I'm just hoping and praying for the best.
Saturday, September 1, 2012
Russell Reunion at Bear Lake
Sun. Aug 5 - 7, 2012
For three wonderful days, I had the to chance to rub shoulders with my family, my mother's side of the family with aunts, uncles, and cousins as we celebrated the Russell Family Reunion. People traveled from Washington State, Minnesota, and from various places in Utah. It was awesome! I'm sure that my grandparents, Joseph Franklin Russell and Marie Elizabeth Wintle were smiling from heaven as they saw their children, grandchildren, great-grandchildren and great-great grandchildren gather at Bear Lake to talk about our heritage, reconnect with one another and to have some good old-fashioned fun!
We rented out 3 condos and had about 36 people in attendance. The days were filled with boating on beautiful Bear Lake and playing in the sand. The evenings were full of BBQ's, games and lots of laughter. The late nights were filled with competitive games of Pinochle, watching the Olympics, and yummy food. It was so much fun. I miss my grandparents, but I'm so grateful for those who sacrificed to come to this reunion and to keep our family ties strong.
For three wonderful days, I had the to chance to rub shoulders with my family, my mother's side of the family with aunts, uncles, and cousins as we celebrated the Russell Family Reunion. People traveled from Washington State, Minnesota, and from various places in Utah. It was awesome! I'm sure that my grandparents, Joseph Franklin Russell and Marie Elizabeth Wintle were smiling from heaven as they saw their children, grandchildren, great-grandchildren and great-great grandchildren gather at Bear Lake to talk about our heritage, reconnect with one another and to have some good old-fashioned fun!
We rented out 3 condos and had about 36 people in attendance. The days were filled with boating on beautiful Bear Lake and playing in the sand. The evenings were full of BBQ's, games and lots of laughter. The late nights were filled with competitive games of Pinochle, watching the Olympics, and yummy food. It was so much fun. I miss my grandparents, but I'm so grateful for those who sacrificed to come to this reunion and to keep our family ties strong.
Friday, August 31, 2012
Wicked the Musical
Thurs. Aug. 2, 2012
Wahoo! Today
is the day we’ve been eagerly awaiting for the past 18 months! We got to take the girls
to see the musical ‘Wicked’ playing at the Capitol Theater in Salt Lake City.
It was unbelievable! We all dressed in black and green in honor of the musical.
Lincoln was a good sport and dressed in the theme colors as well. We met
Lincoln at work and took the girls out to dinner first. Then it was off to the
theater! We played the musical sound track in the car and the girls knew every
single word of every song. There was such a great energy in the air!
The songs
were wonderful, the costumes incredible, and sharing it with my girls and
Lincoln was priceless. I love this show! I’ve seen it 3 times in 3 different
places: Chicago, Los Angeles, and now Salt Lake City. Every time I see it, I
walk away with a smile on my face and warm feeling in my heart. Life is worth
living and I plan on defying gravity as I fight this battle against cancer. I’m
not going to let it keep me down or beat me. I plan on flying. J
Lexy & Ashley
The Tickets!
Enjoying the evening with my guy |
Outdoor Movie
Tues. July 31, 2012
Today I had
high hopes of being able to go walking again for a little exercise, but my feet
had a different idea. Instead I took it easy reading, working on family
history, watching Olympics, and doing a little laundry.
On the other
hand, my daughter Lexy and her friend, Jessi, had bigger plans. They organized
an outdoor movie party in our backyard for the kids that were in their drama
class the past year. At 3:00 this afternoon, they popped homemade popcorn,
baked cookies, made signs and set up the backyard with blankets for people to
sit on. They hung up a sheet on the fence to project the movie on and got the
speakers, laptop and movie set up. They had about 13 or 14 friends show up to
enjoy the evening as the sun went down. They ended up having a blast.
I was
very impressed how organized they were with everything involved. It’s nice to
know that even though my life is ‘on hold’ for the time being, my children’s
lives are moving forward filled with fun, adventure, and opportunities, just as
they should be.
When we're working were happy!
Mon. July 30, 2012
This morning
Ashley and I had to run some errands. I also made another large batch of
zucchini muffins. It’s getting hard trying to keep up with the 2 zucchini plants
that we have in our garden. Next year, we may need to just plant one!
This evening
it was our family’s turn to help clean at the church. Linc suggested I stay
home but I wanted to go and do what I could. My feet continue to be quite
tender, so I volunteered to wash the glass on the foyer doors. Everyone else
ran around emptying garbage cans, vacuuming the carpet and scrubbing toilets
and bathroom floors. I enjoyed being able to be a part of cleaning the church
and visiting with the other ward members who were there to serve as well. I’m
grateful for the beautiful chapel that we have to meet in each week.
Hanging out with the hubby!
Sat. July 28, 2012
Today
Lincoln and I ran a few errands together. He was so patient walking with me
through the stores. I’m such a little turtle some days, but it felt so good to
get out and do something productive. The neuropathy in my feet seems to be
getting worse and I just have to be patient with my feet. Some people say,
“Just sit down and put your feet up!” Well, I can only do that for so long and
then I tend to get a little stir-crazy and need to get out of the house! We ran
into quite a few people at Wal-Mart and it ended up filling my ‘social’ needs
for the day. Later at home, I kicked up my feet and watch a little Olympics.
This
evening, our neighbor’s daughter had a wedding reception and another friend’s
son had a missionary farewell ‘open house’ in their back yard. Lincoln and I
attended both of those and again had our spirits lifted by rubbing shoulders
with so many amazing people that live in our neighborhood.
Olympics - London 2012
Fri. July 27, 2012
Today I felt
like an 8 again (Lincoln has a rating scale to determine how good I’m feeling.
Its a scale of 1-10 with 10 being “Let’s go skiing.”) I got dressed and took
care of things around the house like laundry and some light cleaning. I still
got my afternoon nap in, but when Lincoln came home I wanted to attend a
friend’s wedding reception. I was so glad I was able to make it there and my friend was thrilled and surprised that I actually made it! After having gone through
my son’s wedding recently, I have a much deeper appreciation for others’ weddings and wanting to celebrate with them on their children's special day.
Today is
also the opening ceremonies of the Summer Olympics London 2012 and I have been
so excited to watch the games. I made Lincoln take me to get Fish n chips for dinner
so that I could bring them home and celebrate watching the opening ceremony ‘in
true English style.’ It was a lot of fun
and I’m so excited to root on Team USA for all of the upcoming events. It’s
going to be awesome!
Gotta love those English Fish 'n Chips
Go Team USA!
Did You Say Chunky Cinnamon Bread?
Thurs. July 26, 2012
Every day
getting better than the day before. Today Ashley & I made about 100 yummy
zucchini muffins. We froze some for our family reunion at Bear Lake coming up in
the next week. Others we made to share, and still some we kept to enjoy
ourselves. We love having a garden with all the wonderful bounty that Mother
Nature is blessing us with.
This evening
a sweet friend came by to visit with me and Lincoln. She was my troop guide at
Wood Badge and I just look up to her so much. She has such a quiet, peaceful, sweet
spirit about her in all that she says and does. She brought me a yummy loaf of
chunky cinnamon bread wrapped in a darling kitchen towel. It made me happy. I’m
so grateful for good friends who continually lift me and bless my life.
Yummy Chunky Cinnamon Bread
Zucchini Sticks
Wed. July 25, 2012
Feeling good
this morning, a little short of breath, but that’s normal for now. Feeling well
enough to get showered and dressed for the day is a huge improvement from the
way the last two days have gone. That meant I was ready for a nap by 10am, but
at least it’s an improvement! J
Our garden
has been going crazy with all kinds of yummy vegetables like cucumbers,
zucchini, green peppers, tomatoes and onions. It’s wonderful. Ashley found a
recipe for breaded zucchini sticks on Pinterest and she tried it out this
afternoon. I sat in the kitchen and gave her morale support. It was quite a
long process, but the end result was delicious!
My girl cookin' up some
delicious zucchini bread sticks!
Pioneer Day
Tues. July 24, 2012 Pioneer Day
It’s Day 5
and I’m still taking it easy. This morning my girls and I kicked off the day
watching the Days of 47 Parade on tv. It was fun to feel like a little kid
again watching the floats and cheering for the marching bands. Just another day
of pajamas and napping, on and off.
Ashley made me some yummy frozen
berry smoothies to soothe my sore throat. Lexy checks on me every so often to
fill my water bottle and get me a Popsicle. I’m so grateful for my girls and
the love and service they show me.
Tonight
several ladies from the ward came by with homemade soups for me to keep in the
freezer for our family. They are wonderful ladies and our family is so grateful
for their acts of kindness and service. I love my neighborhood.
Thank you, pioneers!
Another Day 4
Mon. July 23, 2012
Day 4. Today
I was feeling yucky, but that is to be expected on Day 4. I was content to let
myself hang out in my pj’s all day long and just watch movies with my girls in
my bedroom. There’s a great feeling of freedom in allowing myself to be patient
with my body and just let it heal. My sweet visiting teacher brought by some
delicious homemade soup, and fruit for dinner tonight. It was exactly what I
needed!
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